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Helpful Links

The following list of resources and links is provided for information only. Patient Advocacy Services does not recommend or endorse any organization, association or company.

The information provided by these organizations, associations and companies might be helpful in researching topics and questions specific to your situation or help you formulate questions for your physician. When accessing healthcare information on the Internet, Patient Advocacy Services suggests you do so only from sources that you have identified as sound and reputable.
Organization Web Address
Acoustic Neuroma Association
Alexander Graham Bell Association for the Deaf and Hard of Hearing
Alternative Medicine Foundation, Inc.
Alzheimer's Association
American Academy of Allergy, Asthma, and Immunology
American Academy of Family Physicians
American Academy of Maxillofacial Prosthetics
American Academy of Neurology
American Academy of Ophthalmology
American Academy of Oral and Maxillofacial Radiology
American Academy of Orthopedic Surgeons
American Academy of Otolaryngology (Head and Neck Surgery)
American Academy of Physical Medicine & Rehabilitation
American Association of Clinical Endocrinologists
American Association of Neurological Surgeons
American Association of Oral & Maxillofacial Surgeons
American Autoimmune Related Diseases Association
American Brain Tumor Association
American Cancer Society
American Chronic Pain Association
American College of Cardiology
American College of Foot and Ankle Orthopedics and Medicine
American College of Foot and Ankle Surgeons
American College of Gastroenterology
American College of Obstetricians and Gynecologists
American College of Oral and Maxillofacial Surgeons
American College of Physicians/American Society of Internal Medicine
American College of Rheumatology
American College of Surgeons
American Diabetes Association
American Dietetic Association
American Epilepsy Society
American Fibromyalgia Syndrome Association
American Gastroenterological Association
American Geriatrics Society/American Federation for Aging Research
American Health Assistance Foundation
American Heart Association
American Hospice Foundation
American Liver Foundation
American Lung Association
American Obesity Association
American Optometric Association
American Orthopedic Foot & Ankle Society
American Osteopathic Association
American Pain Foundation
American Pain Society
American Physical Therapy Association
American Podiatric Medical Association
American Society of Hypertension
American Urological Association Foundation
America's Health Insurance Plans
Arthritis Foundation
Better Hearing Institute
Brain Aneurysm Foundation
Brain Injury Association of America, Inc.
Brain Trauma Foundation
Brain Tumor Society
Christopher Reeve Foundation
Crohn's and Colitis Foundation of America
Cystic Fibrosis Foundation
Dana-Farber Cancer Institute
Depression and Related Affective Disorders Association
Endometriosis Association
Epilepsy Foundation
Family Caregiver Alliance
FIRST Foundation for Ichthyosis & Related Skin Types
Food Allergy & Anaphylaxis Network
Glaucoma Research Foundation
Huntington's Disease Society of America
Infectious Diseases Society of America
International Dyslexia Association
International Myeloma Foundation
Interstitial Cystitis Association
Kidney Cancer Association
Leukemia & Lymphoma Society
Lewy Body Dementia Association, Inc.
Lupus Foundation of America, Inc.
Multiple Myeloma Research Foundation
Multiple Sclerosis Association of America
Multiple Sclerosis Foundation
Muscular Dystrophy Association
National Alliance on Mental Illness
National Association of Anorexia Nervosa and Associated Disorders
National Ataxia Foundation
National Brain Tumor Foundation
National Center for Post-Traumatic Stress Disorder
National Colorectal Cancer Research Alliance
National Fibromyalgia Partnership, Inc.
National Foundation for Infectious Diseases
National Headache Foundation
National Heart Foundation
National Hospice and Palliative Care Organization
National Kidney Foundation
National Mental Health Association
National Multiple Sclerosis Society
National Organization for Rare Disorders, Inc.
National Osteoporosis Foundation
National Prostate Cancer Coalition
National Psoriasis Foundation
National Rehabilitation Information Center
National Society for Epilepsy
National Spinal Cord Injury Association
National Stroke Association
North American Menopause Society
North American Spine Society
Paget Foundation For Paget's Disease of Bone and Related Disorders
Pleural Mesothelioma (Asbestos)
Prostatitis Foundation
Roslyn Carter Institute for Care giving
Scleroderma Foundation
Sickle Cell Disease Association Of America
Skin Cancer Foundation
Society of Thoracic Surgeons
Spina Bifida Association
Spondylitis Association of America
Think First Foundation (National Injury Prevention)
Thyroid Foundation of America, Inc.
Trigeminal Neuralgia Association
Wellness Community

National Institute of Health
National Cancer Institute
National Center for Complementary & Alternative Medicine
National Center for Infectious Diseases
National Eye Institute
National Health Information Center
National Institute for Allergy and Infectious Diseases
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institute of Diabetes and Digestive and Kidney Disorders
National Institute of Mental Health
National Institute of Neurological Disorders and Stroke
National Institute on Aging
National Institute on Deafness and Other Communication Disorders
National Institutes of Health
Centers for Medicare & Medicaid Services

Patient Advocacy Services welcomes your suggestions and comments. We also look for opportunities to collaborate with other advocacy-based organizations. If you have thoughts about how we can further our efforts to improve the healthcare quality, or if you represent an organization that is interested in improving the patient experience, please email us at

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